For any family living with a child diagnosed with a brain tumour, learning to care for your child can be a challenging and scary experience.  You might need to learn how to administer medication, use new medical equipment, navigate the health, education and social care system, access new support services or how to meet your child's changing needs. 

All these new learnings can make this experience feel even more overwhelming at any given time.  Our holistic wellbeing support service is designed to be flexible and work with you wherever you are on your child's journey, to overcome the particular challenges you identify to us along the way.  We care and want our children and their families to know that our service is reliable, so we work with our families at pace, to find multiple levels of support through the emotional, spiritual, practical and social challenges they may experience during their child's brain tumour journey. 

To do this, we work very closely with our local and regional friends, partners and stakeholders at St Matthew's Church, The Hillingdon Hospital Paediatric Oncology Shared Care Unit (POSCU), Hillingdon Brain Tumour & Injury Group, Hillingdon4All, Carers Trust Hillingdon, Harlington Hospice Hillingdon, care2talk, Halo Children's Bereavement Service, Hillingdon MIND, the Hillingdon Families Information Services and other local services across the charity, health, social and private sector to offer a more robust support service.

Working together and forming strategic alliances is an important value which enables us realise our mission, vision and strive for better longer-term outcomes for our families.  We aim to identify every family's holistic needs in partnership with the medical professionals around their child, so that we can achieve a more positive holistic palliative care experience for our families.

Business Expo -

May 2024

Proud to be members of the Chamber of Commerce and celebrate the 10th anniversary of the Hillingdon Business Expo with the Hillingdon Chamber of Commerce, the Worshipful Mayor of Hillingdon Cllr Coleen Sullivan (2024-2025) and Brunel University. 

An opportunity to participate in the biggest free business fair in the UK and network with over 100 exhibitors and 1,500 attendees to promote Who We Are and What We Do.  It was a timely opportunity to meet the Local Authority, Small Medium and Large businesses to launch our £20k Bumblebee Ward Garden Fundraising Campaign and September 2024 Childhood Cancer Awareness Month Campaign (CCAM).

...by parents for parents

Brain tumours are unlike other childhood cancers. After diagnosis, the child is left with major disabilities including, mobility, sight, hearing or speech loss as early as two weeks.  As the brain and nervous system controls every function in the body, brain tumours or neurological cancers in a child, might introduce learning disabilities and behavioural changes.  For children with cancer and their parent carers, returning to school will often require learning adjustments.  The best approach to returning to school, involves working with the child's clinical team, the local authority SEND team and their school to understand the special adjustments required to ensure that the changes to the child's learning needs can be accommodated to enable them access the right education in the right school, with the right provision by the right person, at the right time.

If you have found that your child's learning changed after they were diagnosed with a brain tumour or neurological cancer, it might be because the way their brain or nervous system functions and controls their learning, cognitive and/or behaviour has changed as a result of the brain tumour or neurological cancer diagnosis.

To speak to a member of our team, please click on the button below to make a referral or request further information. 

We offer free face-to-face and hybrid support to educate the parent carers of our Children and Young People diagnosed with brain tumours or other cancers on how to navigate the SEND pathway. 

We work with the local Special Educational Needs & Disabilities Information And Support Services (SENDIASS) teams and our children's schools to offer our parent carers, children and teenagers with EHCPs the right guidance to help them understand this legal document and the language used within. 

Do you need independent guidance and support with your child's EHCP review?  Please contact us today.

Dannie's Power Smoothies

Exclusively for our children and young people diagnosed with brain tumours, cancer and their families.  These power smoothies are full of superfoods and antioxidants to cleanse the blood stream from the toxins that build up from chemo and radiotherapy. 

Our ingredients remain a 'household secret' but the benefits are unprecedented.  Read the testimonials from our parents. 

We would love to hear from you whether you're a parent, sponsor, member of the public or interested in joint working opportunities. 
Find out more and get in touch with us today.  

Health professionals across the world, encourage a healthy diet, nutrition & lifestyle for a better overall health.  This is critically important in the nutrition and diet of a child diagnosed with, being treated for or recovering from a life threatening or life limiting condition such as a brain tumour or other childhood cancer. 

Knowing what to eat and eating the right antioxidant rich foods during treatment is critical to support a child's body's natural repair process especially after a cancer diagnosis.  This has great potential to improve a child's health and wellbeing during treatment and recovery.  By providing free healthy food boxes, we remain committed to supporting our children and their families to maintain a healthy lifestyle and a diet of fresh fruits and vegetables to support cell growth, repair and reduce toxicity that builds up from harsh cancer treatments.   

Through this cost-of-living crisis and the learnings from the COVID-19 pandemic, we remain committed to meeting our children's needs and offer Dannie's Food Boxes to help reduce healthy food insecurity, fruit and vegetable poverty, healthy food anxiety and the emotional stress experienced in families from lack of access to healthy, nutrition dense food options.

Our registered nutritionist and lifestyle coach is available to encourage our families on how to continue to choose healthy food options through their child's changing nutritional needs. 

Please click on the button below to see some of our volunteers at work delivering this project. 

As members of HeadSmart, we have been designated as regional childhood brain tumour champions for Hillingdon & surrounding North West London (NWL) region.  We work with HeadSmart to co-deliver awareness sessions across our community in conjunction with the Hillingdon Brain Tumour & Injury Group.  Together both charities ensure Hillingdon is empowered to recognise the signs and symptoms of brain tumours amongst it's child & adult professionals, in schools and the community. 

According to research by HeadSmart, children with brain tumours are frequently unwell for a prolonged period before the diagnosis is made.  Furthermore, it can be difficult for healthcare professionals to recognise when a child presents with the signs and symptoms of a brain tumour. 

Many of the initial signs and symptoms of brain tumours in babies, children and young people are non-specific and mimic other more common and less serious disorders.  Read more here.

We are members of The Brain Tumour Charity and are proud to contribute our quota in promoting the HeadSmart Awareness campaign. 

We use Dannie's story and her family's lived experience of her palliative care, to help raise awareness of the signs and symptoms of childhood brain tumours in schools and the community. 

 We are thankful to Bishop Winnington C of E Primary School and Bishop Ramsey C of E Secondary School Ruislip for championing our cause and for their continued support. 

Watch our interview at Bishop Ramsey School, Ruislip HERE.

In 2020, DLF Chief Executive Officer and cofounder Angela Logun, trained as a Quality Improvement (QI) Change Champion with the Quality Improvement Clinic (QIC), founded by Nicola Davey in 2013.  Nicola Davey is one of the directors at Quality Improvement Clinic London, United Kingdom and has contributed to National Patient Safety Campaigns, Patient Safety Collaboratives, and Quality Improvement (QI) initiatives with Royal Colleges.

The Quality Improvement Clinic, leads the way in the delivery of the NHS Long Term Workforce Plan through innovative approaches to education and training to benefit new and existing staff, support professional development and improve patient care. 



The Quality Improvement Clinic has since partnered with the London School of Paediatrics to train paediatricians and parents to use QI practices and principles to solve problems and deliver processes and services that improve patient outcomes. This partnership ensures the excellent training and education of the next generation of NHS staff; to enrich careers, attract diverse staff, boost morale and wellbeing and enable continuing professional development to improve patient care.

In April 2024, Angela Logun and the QIC Learn team of paediatricians attended the International Forum on Quality & Safety in Healthcare, run by The British Medical journal (BMJ) and the Institute for Healthcare Improvement (IHI).  26 QI project posters across diverse paediatric disciplines were exhibited and presented to an international audience at London Excel.  Angela Logun presented a poster "Parents Can Lead QI Too", highlighting the importance of parents learning and leading QI as a practice.

We at the DLF, co-develop holistic wellbeing solutions with our health and voluntary sector partners using QI models.  We use Dannie's story and the lived experience acquired by her parent carers to raise awareness of the wellbeing challenges, demands and issues experienced by children with brain tumours, other cancers and their families today.  We aim to add our voices to the national agenda to reduce wellbeing inequalities and improve health and wellbeing outcomes for these children and their families. 

On Thursday, 25 July 2024, the C-POS study held their final steering group meeting. A robust project. Scientifically complex in leadership. Across 76 UK sites, in consultation with and capturing feedback from over 500 participants, including Children & Young people (CYP), their parents, siblings, Health & Social Care Professionals and commissioners.

We are delighted to participate in this pioneering research that has emerged after at least 20yrs+ of research yearning.  Finally, this paediatric outcomes scale that measures holistic wellbeing priorities for our children with life limiting and life threatening conditions and their families is close to completion.  The study is in its final week of recruiting families, before analysis begins.

We are privileged to participate with @fabian_trust, @DrLucyCoombes,@HannahM_Scott20, @RHardingCS, @DEBraybrook and grateful to the wider research project team for working with @DaniellaLogun.